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Marlie Casseus suffers from polyostotic fibrous dysplasia. Genetic disease that causes bone to swell and become jelly-like, which is growths large throughout the body, includes face and skull. Before surgery, her bone growth had become a 16-pound tumor-like mass that covered almost her entire face. This is causing she could only breathe and eat through one narrow passage. It was threatening her breathing and would have eventually caused blindness if doctors hadn’t operated.

She has four reconstructive surgeries since Dec 2005 in Miami at the Holtz Children’s Hospital. First surgery was procedure to removal the growth from both sides of her face. During that process, the doctors replaced a titanium plat in her jaw, rebuilt her nose, and drew her eyes and lips together. She might require further cosmetic surgeries, doctors indicated.

Talking about this disease, it has hormonal problems with premature sexual development, also called the Albright syndrome. There is bone disease with fractures and deformity of the legs, arms and skull. Pigment patches of the skin. Polyostotic fibrous dysplasia is usually caused by mosaicism for a mutation in a gene called GNAS1 (Guanine Nucleotide binding protein, Alpha Stimulating activity polypeptide). Sometimes, children are diagnosed in early infancy with obvious bone disease and markedly increased endocrine secretions from several glands.

Marlie made her first public appearance in September after her third surgery. After a fourth surgery in October, Marlie can now speak again. Her first words in six years, Marlie Casseus simply said, “Thank you.” Marlie will return to Miami for operations to rebuild her nose and her mouth. Funds raised by the International Kids Fund helped bring Marlie to Miami for treatment. As the doctors said, she still needs two more surgeries in two years later, until her facial bones have finished growing.

Oh oh i really wanted that thing
I just want to sing
I love you baby
Won’t you bring
All the flowers you
Find out in the garden
Don’t tell me the truth
That your heart has hardened

But you don’t want me anymore
How can it be
Look what you’ve done to me

Oh oh
Oh oh the bee does quickly sting
I was wondering
If you could maybe darling
Think? I’d give everything
If you’d grant my love a pardon
And all the fruits
Again would fill the garden

But you don’t want me anymore
How can it be?
Look what you’ve done to me

Oh oh
Oh oh, oh oh oh oh (and so on)

“Britney has made clear to everyone that she does not want to be further harassed or contacted in any way by Osama ‘Sam’ Lutfi, now or at anytime in the future,” Spears’ attorney Samuel D. Ingham III said in a statement to The Associated Press.

“Osama ‘Sam’ Lutfi“, for the time being, seems willing to go along with those wishes.

He called the AP late Wednesday and released the following statement: “Osama ‘Sam’ Lutfi and Britney Spears have mutually agreed in private that no hearing or order is necessary at this time.”

Chris McAlister of the Baltimore Ravens drives a big truck like the ironhide from transformers.

“Chris mcallister truck” must beat another car in the highway.

Buying the Cow Synopsis

David Collins is a commmitment-shy Los Angeles yuppie whose girlfriend of many years, advertising executive Sarah, gives him an ultimatum: commit or get out. David has two months to decide if he wants to stay with Sarah as she leaves town for a job in New York. Following the advice from his more outgoing friends, David hits the dating scene as he tries to find his one and only soul mate, a mysterious woman he sees again and again, but always gets away before he can talk to her

“Buying the Cow” Stats :
Directed by     Walt Becker
Produced by     Dan Etheridge
Bradley Jenkel
Written by     Walt Becker
Peter W. Nelson
Starring     Jerry O’Connell
Bridgette Wilson
Ryan Reynolds
Bill Bellamy
Alyssa Milano
Distributed by     Destination Films
Release date(s)     June 8, 2002
Running time     88 min.
Language     English

At first sight, I thought I’m gonna love this iPhone. Lucky for us! The new TouchWiz UI Samsung is building for its touch screen phones. Let’s get back then in March, when this phone was launched. “AnyCall Haptic SCH-W420” they called, has a large touch screen. Haptic is from the Greek “haptesthai,” as an adjective, it means “sense of touch”

Centered around a 16:9, 3.2-inch screen, the phone includes DMB, a 2 megapixel camera and Bluetooth 2.0. Customizable home screen (with widgets) also includes a terrestrial broadcast TV receiver. Provides user with 22 kinds of touch sensations, Haptic were enables users to feel clicks, vibration and other tactile input. The feature set seems to be squarely targeted at the consumer, but the price sure ain’t.

Just a small point here, the phone is going to sell for $700 to $800 and is Korea only. What’s next? Hopefully this is can be reach at our country.

“Design Star “is one of an American reality competition show that airs in cable television HGTV. The show is hosted by Clive Pearse has competing for an HGTV contract and their own show. The finalists are who run their own successful interior design business, like an architects, art teacher, a furniture designer and a police who patrols by day and designs by night. The rules are, the designers are given a specified amount of time to complete each project, as well as a specified amount of cash in order to create a design to be judged.

This evening the result was down to two finalists, they are Jennifer Bertrand and Matt Locke. Their season finale will be held on Sunday, august 3 at 9/8c. Their final challenge is to design a kitchen, dining room and living room for two families who lost nearly everything in during hurricane Katrina. They have 36 hours in 4 days to do all the technical process with carpenter also the designer. Working with $20.000 budget, they need to build kitchen appliances with sears and flooring for lumber liquidators.

Everyone can Vote for the HGTV Design Star on HGTV.com once a day online and up to five times a day with your cell phone until 10am EST on Wednesday, July 30. To vote via cell phone, text the letter A to 44881 for Jennifer Bertrand or the letter B to 44881 for Matt Locke.

“Kenadie Jourdin-Bromley”, known around the world as “the littlest angel”, was born Feb.13, 2003, weighing just 2 lbs, 8 ounces.

“Kenadie Jourdin-Bromley” Pictures

Doctors were at a loss as to why kenadie jourdin-bromley - primordial dwarfism was born so small and told her parents this little miracle baby likely wouldn’t live through the night. But she did.

Primordial Dwarfism is a category of disorders with many subtypes. Its definition is vague but basically means that these children are profoundly growth delayed for their gestational age before birth and at birth .There may be several links to why this occurs.

Kenadie Jourdin-Bromley continued to defy doctors expectations and at the age of 8 months, Kenadie was finally diagnosed with primordial dwarfism, a genetic condition that is believed to affect only about 100 people in the world. She isn’t expected to grow past about 30 inches or weigh more than 8 pounds.”

Estimates of the number individuals with dwarfism in the United States range from 100,000 to 500,000. Most cases of short stature are caused by skeletal or endocrine disorders. Including all known types, there are currently over 200 types of dwarfism, primordial dwarfism included.

“PRIMORDIAL DWARFISM” (PD) IS A DIAGNOSTIC CATEGORY INCLUDING SPECIFIC TYPES OF SEVERE PROPORTIONATE DWARFISM, IN WHICH INDIVIDUALS ARE SMALL FOR THEIR CHRONOLOGICAL AGE FROM THE VERY BEGINNING OF LIFE.

Within some of the types of primordial dwarfism, there has been considerable debate and significant confusion over which clinical findings constitute a particular syndrome. In general, each type of dwarfism is defined by its own physical, mental and developmental findings. In the many forms of primordial dwarfism, these are not so clearly defined and separated. In addition to the severity of growth delay itself, many of the health findings vary widely. Many affected individuals are generally referred to as having of primordial dwarfism because specific diagnosis within the category of primordial dwarfism is difficult.

“Meditations in an Emergency by frank o hara”

Am I to become profligate as if I were a blonde? Or religious as if I were French?

Each time my heart is broken it makes me feel more adventurous (and how the same names keep recurring on that interminable list!), but one of these days here’ll be nothing left with which to venture forth.

Why should I share you? Why don’t you get rid of someone else for a change?

I am the least difficult of men.  All I want is boundless love. Even trees understand me! Good heavens, I lie under them, too, don’t I? I’m just like a pile of leaves.

However, I have never clogged myself with the praises of pastoral life, nor with nostalgia for an innocent past of perverted acts in pastures.  No.  One need never leave the confines of New York to get all the greenery one wishes–I can’t even enjoy a blade of grass unless i know there’s a subway handy, or a record store or some other sign that people do not totally _regret_ life.  It is more important to affirm the least sincere; the clouds get enough attention as it is and even they continue to pass.  Do they know what they’re missing? Uh huh.

My eyes are vague blue, like the sky, and change all the time; they are indiscriminate but fleeting, entirely specific and disloyal, so that no one trusts me.  I am always looking away. Or again at something after it has given me up.  It makes me restless and that makes me unhappy, but I cannot keep them still.  If only i had grey, green, black, brown, yellow eyes; I would stay at home and do something.  It’s not that I’m curious.  On the contrary, I am bored but it’s my duty to be attentive, I am needed by things as the sky must be above the earth.  And lately, so great has _their_ anxiety become, I can spare myself little sleep. Now there is only one man I like to kiss when he is unshaven. Heterosexuality! you are inexorably approaching.  (How best discourage her?)

St. Serapion, I wrap myself in the robes of your whiteness which is like midnight in Dostoevsky.  How I am to become a legend, my dear?  I’ve tried love, but that holds you in the bosom of another and I’m always springing forth from it like the lotus–the ecstasy of always bursting forth!  (but one must not be distracted by it!) or like a hyacinth, “to keep the filth of life away,” yes, even in the heart, where the filth is pumped in and slanders and pollutes and determines.  I will my will, though I may become famous for a mysterious vacancy in that department, that greenhouse. Destroy yourself, if you don’t know!

It is easy to be beautiful; it is difficult to appear so.  I admire you, beloved, for the trap you’ve set.  It’s like a final chapter no one reads because the plot is over. “Fanny Brown is run away–scampered off with a Cornet of Horse; I do love that little Minx, & hope She may be happy, tho’ She has vexed me by this exploit a little too.–Poor silly Cecchina! or F:B: as we used to call her.–I wish She had a good Whipping and 10,000 pounds.”–Mrs. Thrale I’ve got to get out of here.  I choose a piece of shawl and my dirtiest suntans.  I’ll be back, I’ll re-emerge, defeated, from the valley; you don’t want me to go where you go, so I go where you don’t want me to.  It’s only afternoon, there’s a lot ahead.  There won’t be any mail downstairs.  Turning, I spit in the lock and the knob turns.

HGTV Design Stars show, competition based of which is home improvement and interior design, was down to two this evening. The finale of HGTV Design Stars is in New Orleans. Their final challenge of the last two competitors of “HGTV design stars” is to design a kitchen, dining room and living room for two families who lost nearly everything in during hurricane Katrina.

To pull on our heartstrings all the more, one family is headed by a fireman and the other a police officer. They have: 36 hours over 4 days, which was broken up as follows: Day 1 – 8 hours with 1 carpenter Day 2 – 12 hours with 3 carpenters; plus Mikey and Trish show up to help. Matt selects Trish to help with paint and therefor leaves Mikey to Jennifer to help her to with installing a kitchen. Day 3 – 12 hours with 3 carpenters and Trish and Mikey switch designers. Day 4 – 4 hours with no help Budget: $20,000 Sears – kitchen appliances Lumber Liquidators – flooring

Yay to Jen and Matt for being such nice people and making the final task all about the homeowners. You are both winners! Yay to HGTV for providing sufficient help to get the job done well for the sake of the homeowners and the designers. It’s so frustrating when the producers shortchange the projects in the name of creating more drama. Poo! We want to see real work and real design - not forced drama by lack of time or support staff.

All HGTV Design Stars Series :

hgtv - Design Star 4 casting call

hgtv - Design Star 3

hgtv - Design Star 2

hgtv - Design Star 1